References

Faculty of Dental Surgery. Clinical guidelines and integrated care pathways for the oral health care of people with learning disabilities. 2012. https://www.rcseng.ac.uk/library-and-publications/rcs-publications/docs/oral-health-care/
Office of the Public Guardian, Ministry of Justice. Mental Capacity Act: making decisions. 2023. https://www.gov.uk/government/collections/mental-capacity-act-makingdecisions
Ward LM, Cooper SA, Hughes-McCormack L Oral health of adults with intellectual disabilities: a systematic review. J Intellect Disabil Res. 2019; 63:1359-1378 https://doi.org/10.1111/jir.12632
Morgan JP, Minihan PM, Stark PC The oral health status of 4,732 adults with intellectual and developmental disabilities. J Am Dent Assoc. 2012; 143:838-846 https://doi.org/10.14219/jada.archive.2012.0288
Cumella S, Ransford N, Lyons J, Burnham H Needs for oral care among people with intellectual disability not in contact with Community Dental Services. J Intellect Disabil Res. 2000; 44:45-52 https://doi.org/10.1046/j.1365-2788.2000.00252.x
Byrappagari D, Jung Y, Chen K Oral health care for patients with developmental disabilities: a survey of Michigan general dentists. Spec Care Dentist. 2018; 38:281-290 https://doi.org/10.1111/scd.12303
Lees C, Poole H, Brennan M, Irvine F Adults with learning disabilities experiences of using community dental services: service user and carer perspectives. Br J Learning Disabilities. 2017; 45:114-120
Gordon SM, Dionne RA, Snyder J Dental fear and anxiety as a barrier to accessing oral health care among patients with special health care needs. Spec Care Dentist. 1998; 18:88-92 https://doi.org/10.1111/j.1754-4505.1998.tb00910.x
McGeown D, Stapleton S, Nunn J A cost analysis estimation of a single episode of comprehensive dental treatment under general anaesthesia for adults with disabilities. Br Dent J. 2018; 224:442-446 https://doi.org/10.1038/sj.bdj.2018.124
Phadraig CMG, Griffiths C, McCallion P Communication-based behaviour support for adults with intellectual disabilities receiving dental care: a focus group study exploring dentists' decision-making and communication. J Intellect Disabil. 2019; 23:526-540 https://doi.org/10.1177/1744629517738404
MacGiolla Phadraig C, Asimakopoulou K, Daly B Nonpharmacological techniques to support patients with intellectual developmental disorders to receive dental treatment: a systematic review of behavior change techniques. Spec Care Dentist. 2020; 40:10-25 https://doi.org/10.1111/scd.12434
Mac Giolla Phadraig C, Newton T, Daly B BeSiDe time to move behavior support in dentistry from an art to a science: a position paper from the BeSiDe (Behavior Support in Dentistry) Group. Spec Care Dentist. 2022; 42:28-31 https://doi.org/10.1111/scd.12634
Bradshaw J The use of augmentative and alternative communication apps for the iPad, iPod and iPhone: an overview of recent developments. Tizard Learning Disability Review. 2013;
Makaton resource. https://www.makaton.org
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Samuels R, Stansfield J The effectiveness of social stories™ to develop social interactions with adults with characteristics of autism spectrum disorder. Br J Learning Disabilities. 2012; 40:272-285
Dougall A, Fiske J Access to special care dentistry, part 2. Communication. Br Dent J. 2008; 205:11-21 https://doi.org/10.1038/sj.bdj.2008.533
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Patient-support techniques for treating patients with learning disabilities

From Volume 51, Issue 2, February 2024 | Pages 122-130

Authors

Stephanie Fenesan

BDS, BSc(Hons), AKC, MSc, MSCD RCS Ed

Specialty Trainee in Special Care Dentistry, Department of Sedation and Special Care Dentistry, Guy's Dental Institute, Guys and St Thomas' NHS Foundation Trust

Articles by Stephanie Fenesan

Email Stephanie Fenesan

Jennifer Hare

D Health Psy, CPsychol, AFBPsS

Consultant Health Psychologist, Dental Psychology Service

Articles by Jennifer Hare

Email Jennifer Hare

Bryan Kerr

Consultant in Special Care Dentistry, Department of Sedation and Special Care Dentistry, Guy's Dental Institute, Guys and St Thomas' NHS Foundation Trust, London

Articles by Bryan Kerr

Abstract

There are many techniques that can, with simple adjustments, be used for patients with learning disabilities. A number of techniques may be familiar to dentists as those which are applied to anxious or paediatrics patients. There is a lack of focused articles clearly describing specific techniques that can be used for individuals with learning disabilities and how these can be adapted to help enable dental assessment and treatment. This article aims to inform general dental practitioners of patient-support techniques that may be used or adapted for individuals with learning disabilities.

CPD/Clinical Relevance: Dental professionals should be able to make reasonable adjustments to their practice to better support individuals with learning disabilities who access dental care.

Article

Mencap estimates that there are approximately 1.5 million people in the UK with a learning disability, affecting an estimated 2.16% of adults and 2.5% of children.1 Individuals with learning disabilities will present with a reduction in intellectual ability and difficulties with learning and understanding new information, social tasks and completing activities of daily living, resulting in the need for additional support.2 There are varying degrees of learning disabilities (LD), ranging from mild to severe/profound, which will affect the capabilities of an individual as well as their ability to communicate and understand social interaction (Table 1). Under the Equality Act (2010), organizations, including dental services, must make reasonable adjustments to ensure services are accessible for people with learning disabilities.3

Owing to difficulties with social interaction and communication, patients may require additional time to support understanding, along with adjustments in communication methods, such as using clear simple language and easy-to-read leaflets with pictures.4 The patient's capacity to consent for treatment may be affected, and capacity must be assessed according to the principles of the Mental Capacity Act.5 Adults with learning disabilities experience poorer oral health, including suboptimal oral hygiene, poor gingival health and a higher prevalence of dental caries and periodontitis.6,7 They also have higher incidence of unmet dental needs.8 This cohort of patients can find it difficult to access dental services, and when they do, dentists report difficulties in providing care, with commonly cited reasons including behaviour management of the patient and inadequate training or experience.9

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