The long and winding road part 2. the CLP patient's journey, 0–21 years

From Volume 41, Issue 1, January 2014 | Pages 20-26

Authors

Paul Jonathan Sandler

BDS(Hons), PhD, MSc, FDS RCPS, MOrth RCS

Consultant, Orthodontic Department, Chesterfield and North Derbyshire Royal Hospital, Chesterfield, UK.

Articles by Paul Jonathan Sandler

Alison Murray

BDS, MSc, MOrth RCS(Eng), FDS RCPS(Glasg)

Consultant Orthodontist, Royal Derby Hospital, Derby

Articles by Alison Murray

Robert Orr

BDS, MBChB, FDS RCS

Consultant Maxillofacial Surgeon, Chesterfield Royal Hospital, Calow, Chesterfield, S44 5BL, UK

Articles by Robert Orr

Arun K Madahar

BDS, MFDS RCS(Edin), SHO

SHO Department of Oral and Maxillofacial Surgery, QMC Campus, Nottingham University Hospitals Trust, Derby Road, Nottingham, NG7 2UH

Articles by Arun K Madahar

Abstract

Patients with a cleft lip and palate (CLP) deformity require the highest standard of care that the NHS can provide and this requires multidisciplinary care from teams located in regional cleft centres.

Care of these cases is from birth to adulthood and requires several phases of intervention, corresponding to the stages of facial and dental development. Management ideally starts pre-natally, following the initial diagnosis, and occasionally pre-surgical appliances are prescribed. The lip is ideally repaired within three months, followed by palate closure between 12 and 18 months. Careful monitoring is required in the first few years and ENT referral, where necessary, will diagnose middle ear infection, which commonly affects CLP patients. Speech therapy is an integral part of the ongoing care. Excellent oral hygiene is essential and preventive dietary advice must be given and regularly reinforced. Orthodontic expansion is often needed at 9 years of age in preparation for a bone graft and, once the permanent dentition erupts, definitive orthodontic treatment will be required.

Maxillary forward growth may have been constrained by scarring from previous surgery, so orthognathic correction may be required on growth completion. Final orthodontic alignment and high quality restorative care will allow the patients to have a pleasing aesthetic result.

CLP patients and their families will need continuing support from medical and dental consultants, specialist nurses, health visitors, speech and language specialists and, perhaps, psychologists. The first article in this series of two outlined the principles of care for the CLP patient and this second part illustrates this with a case report, documenting one patient's journey from birth to 21 years of age.

Clinical Relevance: A successful outcome for CLP patients requires a sound dentition. The general dental practitioner role is vital to establish and maintain excellent oral hygiene, a healthy diet and good routine preventive and restorative care. Understanding the total needs of CLP patients can help the dentist to provide high quality care as part of the multidisciplinary management.

Article

James was born on 15 July 1989 and was diagnosed with a bilateral cleft lip and palate. There was no family history of clefting and no predisposing factors were identified within the history.

He was seen in the maternity unit by the Consultant Orthodontist who decided to apply gentle lip strapping across the markedly displaced premaxilla, with the main aim of reducing the gap between the medial and lateral lip segments, particularly on the right-hand side. The patient's mother was instructed in replacement of the lip strapping and was asked to replace it as often as was necessary. It can be seen from Figures 1 a and b that the size of the cleft on the right side reduced from about 4 mm to 0 mm within a ten-week period. James fed well from birth, and feeding support other than advice and encouragement was not required.

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